MRKH

Mayer-Rokitansky-Küster-Hauser Syndrome, or MRKH, is a condition in which a person is born with an under-developed uterus, cervix, and vagina. About 1 in 5,000 people assigned female at birth are born with MRKH. Unfortunately, education, awareness, and support are scarce and make it feel much rarer than it actually is. The treatment path is also difficult, leaving many of us with MRKH feeling alone, ashamed, and with nowhere to turn.  

I’m here to change all that. And a bunch of other stuff, too…

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Things to Know About MRKH

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What I learned is that there’s a big
difference between what’s secret and what’s private.
The private pieces of us are meant to be shared, in trusted circles, because that’s where we find our wholeness,
our community - our Sumaavi.

A word for the things we have no words for.

RIMA ZIGAITIS

My Story

Hi. I’m Rima and I’m here to help you live a life of wholeness. First, let’s get some things out of the way…I was born without a uterus or vagina.

Kind of heavy, I know. Even after getting treatment, it was a secret I carried around like a boulder my whole life. First in front of me, then to the side, until I finally couldn’t stand the weight of it anymore. That stuff is hard to carry. You see, after years of feeling happiness was a thing for “those people over there”, I finally learned to set it down and enjoy life.  

I personally witnessed the magical transformation that comes from a successful coaching partnership, as a client and coach. After years of dedicated self-growth, a coaching certification, and a consulting career in Adult Learning & Development, I focused on what really matters and created Sumaavi and the Trusted Circle.  

At Sumaavi, we help you connect to a heartfelt community, shift attitudes and self-perception plus grow into the most confident, whole version of yourself. Your playing small doesn’t serve the world. We are all meant to shine. It’s time you believed it, too!    

Can’t wait to meet you!

Coaching Certifications

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And suddenly you know...
It's time to start something new and
trust the magic of beginnings.

Anonymous

Our Partners

Beautiful You MRKH Foundation is the first ever MRKH non-profit to focus on funding research into the causes of MRKH, as well as the short-term and long-term emotional impact of MRKH on teens and adults. They also focus on much needed medical awareness to enable physicians and their staff to provide more knowledgeable and sensitive care when diagnosing and treating MRKH. Their dedication to inclusivity is the foundation for our warm and welcoming MRKH community.

Thank you for your partnership, BYMRKH!

Donate to MRKH research

What they do

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How they help

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Get involved

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What is Coaching?

Sumaavi believes we are whole and beautiful in our core. Through our coaching, we guide you toward finding your fullest, most brilliant self whether you are struggling with MRKH or simply interested in taking a step forward. You deserve this.

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What is the Trusted Circle?

The Trusted Circle membership is your safe space for all things MRKH. More than a community – we’ve got monthly coffee chats, group mindset coaching, motivation, music and more. We are stronger together. Learn to take a step forward – we’re right by your side.  

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